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  • PM Houston August 2015

World Thalassemia Day

5/3/2014

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For the upcoming International Thalassemia day this 8th of May, we are teaming up with our Patron 5p Foundation to raise awareness about this disorder. We speak with Kamini from North America about her experiences as a mother whilst her daughter suffered from Thalassemia. Many of the recommendations she gives are practical pieces of advice for everybody in today's world of a growing genetic makeup. What's more, the UK Thalassemia Society is also organising a run here in North London at the Alexandra Palace so you may wish to participate if you are out and about. More details here (Participants can choose to either walk or run the course; and they can also choose between a 5k and a 10k circuit, so there is something to suit everybody’s fitness level).
What is Thalassemia?

Thalassemia is a blood disorder which is common in the Mediterranean, North Africa, and Western and Southern Asia. It is estimated to have killed about 18,000 people in 2010 alone, although this figure may be inaccurate, given that the disease is common in area's of the world where it is difficult to pick up on health issues.

It affects the haemoglobin and red blood cells, which limits the amount of oxygen that can be sent around the body. This can lead to issues such as infection, bone deformities, enlarged spleen, slower growth rates, and heart issues. Because the treatment can involve frequent blood transfusions, this can also lead to increased amounts of iron in the blood (although this can also happen because of the disease itself), which then has to be dealt with through medication.

It has survived as it tends to protect the individual from malaria, which is why it is found in in area's where malaria is, or used to be, an issue. For example, the Tharu people in Nepal and India live in a part of the world that has a very heavy malaria infestation, but have very low infection rates. Genes for thalasseamia have been found in almost all of the individuals in the Tharu population.

How can it be contracted?

Thalassemia is passed genetically, and can only be passed if both parents are affected. If they are both affected, then there is a 25% chance their child will be unaffected, a 50% chance they will have the ability to pass on the disorder, but will be unaffected themselves, and a 25% chance they will be affected.

Is there a treatment?

There are only really two ways of curing Thalassemia. The first is to get a transplant of bone marrow, or (less commonly) blood from an umbilical cord. Both have to be from a sibling to have a large chance of success, and ideally transplanted when the patient is young.

The second is preventative. If people check whether they have the disorder, and know whether they need to check children before they are born, thalassaemia could be eradicated in a generation. This is happening in Cyprus, which has one of the highest rates of the disorder in the world (16%), but through screening and abortion, rarely has a case in the younger generation.

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You are what you eat, not what you think

11/6/2013

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This is a bit of research which confirms what a lot of people know. People are terrible at judging themselves. It is easy to see that double chin as a bit of lose skin, or that spare tire as a healthy sign of enjoying life. It gets worse when the amount of body fat increases, as it is very easy to go from fat to very fat without noticing the difference.

A 6 pack to a love handle (say, 10% body fat changing to 20%) is noticeable, but fat to very fat (say 30% body fat to 40%) gives less visual clues to work with.

For further insight, lets go to Mr Large Person and Mr Serious,

Part of the problem is that in a society getting larger and larger, the norm is overweight, which means many will not see this as an issue. Few over weight people saw themselves as overweight (58% said normal weight), even fewer obese people (10%) knew they were obese. This is compared to 80% normal weight people who knew they were normal weight. This lack of knowledge will likely reduce motivation to change, and mean simple, but important, decisions about a lifestyle may not occur.


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So what do you take from this? For yourself, BMI, calliper measurements, tape measurements, and body fat analysers are not perfect, but you don’t really need to be accurate to 0.1%, or half a pound (BMI is especially bad if you are a trained individual or older). They will give you a vague idea of where you are and where you need to be. For the people you know, be honest, because they may be unable to be honest with themselves.
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    Jeff

    Being in good health is the first thing you do, before starting to think of changing the world! 

    All the health goodness Jeff can give you, whenever he gets those ideas and time to write things down. Also, if you're a vegetarian, then it's a good place to keep coming back to make sure you're eating right. Jeff is good at that!

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